We are pleased that you are interested in joining us for Nevada Chapter's State Advocacy Days taking place in Carson City from Tuesday, March 25th - Wednesday, March 26th.

State advocacy days are one of the major highlights of local chapter advocacy programs. NBDF Nevada's State Advocacy Day occurs in odd-numbered years and includes volunteer representatives from the entire state of Nevada. Volunteer representatives include individuals with a bleeding disorder and/or their family members, community volunteers, and other organizations. We come together to host a day at the state capitol. The event usually consists of a training session where we provide talking points and engage in role-playing activities. Training is followed by a day at the capitol where volunteers meet with their elected officials to educate them about hemophilia, von Willebrand disease, and other related bleeding disorders. Constituents may visit representatives for various reasons, including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.

State advocacy days allow elected officials to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.

All members of the Nevada Bleeding Disorders Community are welcome to attend. The Nevada Chapter will be paying for transportation & hotel costs for up to 4 families from across the state to attend. Training & meals will be provided for all members of the community who attend. Families with members employed by a pharmaceutical manufacturer or a specialty pharmacy serving the bleeding disorders community are not eligible to receive assistance with transportation & hotel costs.

Deadline: To be considered for assistance, you must apply by February 24th, 2025. Registration for the event closes on 2/28. Registering early allows a better chance to meet with your representatives on 3/26.

Questions?

Contact: Jacob at 646-901-6442 or jmurdock@bleeding.org

RE: Carson City Advocacy Days